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Modelo com distrofia muscular rouba os holofotes do NYFW e luta pela inclusão de pessoas deficientes no universo da moda

Modelo com distrofia muscular rouba os holofotes do NYFW e luta pela inclusão de pessoas deficientes no universo da moda

modelo com atrofia capa
Rafael d'Avila

Jillian Mercado tem 32 anos e é uma modelo e atriz norte-americana que no último dia 9 de fevereiro roubou todos os holofotes quando apareceu na passarela do Nova York Fashion Week (NYFW).

Ela sofre de distrofia muscular, uma síndrome ligada ao cromossomo X que faz com que a musculatura se atrofie, Jillian é uma das únicas modelos do mundo que tem essa doença e usa a sua posição de destaque para mostrar como o universo da moda tem poucas pessoas com deficiência.

Um dia após o desfile ela usou o seu Instagram pessoal para fazer um desabafo:

 

Ver essa foto no Instagram

 

This moment was brought to you by…⁣⁣ Every single person who has a disability around the world that has felt unseen and unheard. For the countless of times that we all have shouted for respect and equal representation. Or for the times other people speak for us, not with us. For when we felt like we just didn’t belong in this world because no one thought that we were capable of doing anything. The times where people speak to everyone about our problems or our needs but us. ⁣ ⁣ This moment is brought to you by a young girl looking through magazines-collecting them to the point of basically being a hoarder and watching fashion television while taking notes of how to be the best in the industry-being glamorized by the world of fashion and loving every single moment of what she saw but wondering if she actually belonged. Wondering if they would actually accept her for being exactly who she is, even though she never saw someone who had a visible disability in those magazines or television. Imagining what that would look like was nothing but a dream, a fantasy. One that she was told again and again that it would never be possible, that the world wasn’t ready, that the world wouldn’t give her a chance. This moment. This exact moment, It’s for you.⁣⁣ ⁣⁣ I’ve been through countless wars making sure that this moment was exactly how I imagined through every obstacle you can think of. Determination helped me get to this moment and those who believed in me made sure that it was as perfect as I knew I could be. Thank you to @davidblond and @phillipeblond for giving me this opportunity of a lifetime, a huge mile stone in my career.⁣?⁣ ⁣⁣ photo by @alexcruz.nyc

Uma publicação compartilhada por Jillian Mercado (@jillianmercado) em 10 de Fev, 2020 às 8:41 PST

“Este momento foi trago para você por todas as pessoas que têm alguma deficiência no mundo e que tenham se sentido invisíveis e não ouvidas. Nas inúmeras vezes em que todos nós gritamos por respeito e representação igualitária. Ou pelo tempo em que outras pessoas falavam em nosso nome, mas não por nós“, escreveu.

“Sentimos por muito tempo que simplesmente não pertencíamos a este mundo, pois ninguém pensava que éramos capazes de fazer qualquer coisa”.

“Passei por incontáveis batalhas para ter certeza de que esse momento seria do jeito que imaginei. Determinação me ajudou a chegar nesse momento”, escreveu Jillian para seus 156 mil seguidores.

Jillian é filha de costureira e viu sua vida mudar em 2014 quando foi recrutada para fazer parte do casting da IMG, coincidentemente a mesma agência de Gisele Bündchen.

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